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Subject: "#hospitaldays b/w a game" Previous topic | Next topic
imcvspl
Member since Mar 07th 2005
42239 posts
Wed Aug-06-14 08:48 AM

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"#hospitaldays b/w a game"


  

          

So for the past four months I've been caring for my son who's been getting regular out patient care while waiting for a diagnosis and treatment path for what he's been dealing with. Some of you might remember last year he was included in the Discovery Museum's lego exhibit (his built when he was 5 is the first in this series - http://www.timeout.com/new-york-kids/things-to-do/check-out-kids-lego-works-at-the-art-of-the-brick-slide-show).

So we've been going into the hospital sometimes three times a week to get maintenance treatment while they figure out what's going on. Its crazy because over the course of the four months I've met at least a hundred kids and their parents just from the local tristate area who've been dealing with blood disorders and cancer. There's some suffering right under our noses that we don't even recognize until we're in the midst of it. At the end of the day I'm thankful because what my son's prognosis could have been a lot worse. I've met folk dealing with a lot worse. But it's still hard as shit.

So anyway they finally figured out how they want to treat him and I'm headed into the hospital now for another round of inpatient, sleeping in lounge chairs and eating coffee for breakfast lunch and dinner.

On the brighter side though one of the projects we were working on over the summer, which was to create a game for Marbles the Brain Store's pattern game challenge, was selected as a finalist. While I helped in the execution, the direction of the project was driven by my two older kids. I'd love to win this for them and so if yall wouldn't mind going to the facebook page https://www.facebook.com/media/set/?set=a.10152616131952372.1073741842.25943667371&type=1 and after you've had a look at all the games, click on the image for Ciphexr and throw it a like. Also feel free to leave a comment.

The winner is set to be announced on National Geographic's Brain Games (another favorite show of my kids) on August 25th. If all goes well my son should be home by then.

Thanks.

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Big PEMFin H & z's
"I ain't no entertainer, and ain't trying to be one. I am 1 thing, a musician." © Miles

"When the music stops he falls back in the abyss."

  

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#hospitaldays b/w a game [View all] , imcvspl, Wed Aug-06-14 08:48 AM
 
Subject Author Message Date ID
a modern problem with historical and societal implication
Aug 06th 2014
1
I'm listening :-)
Aug 06th 2014
2
On a related note, Black women disproportionately die from cancer
Aug 07th 2014
4
      FAM!! This quote right here
Aug 07th 2014
7
damn. peace to you and yours, fam.
Aug 06th 2014
3
depression is ravaging these parents
Aug 07th 2014
5
on protocols
Aug 07th 2014
6
Powerful n/m
Aug 07th 2014
8
What I wouldn't give to be able to control the air conditioning n/m
Aug 07th 2014
9
awesome. i noticed you have a hook bracelet on in the film...
Aug 07th 2014
10
it's my wedding ring
Aug 07th 2014
11
      how sweet! mine never comes off! i love that tradition.
Aug 07th 2014
12
nutrition
Aug 08th 2014
13
yup
Aug 10th 2014
18
on how i gave up hoping
Aug 09th 2014
14
Two years, ten months and five days
Aug 09th 2014
15
yes. it's a long road
Aug 10th 2014
19
I had a day off from the hospital
Aug 10th 2014
16
damn bruh. crazy
Aug 10th 2014
20
Brought my son home today
Aug 10th 2014
17
fucking steroids
Sep 02nd 2014
21
all my hesitance to drug treatment shit coming back
Jan 12th 2015
22

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