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Forum nameGeneral Discussion
Topic subjectMom started chemotherapy today
Topic URLhttp://board.okayplayer.com/okp.php?az=show_topic&forum=4&topic_id=13358358
13358358, Mom started chemotherapy today
Posted by handle, Thu Dec-05-19 11:51 PM
I'm super bummed she has to go through this.

If everything goes okay it's still like 15 weeks of chemo (2 pills a day and IV once every 3 weeks) then 12 weeks of radiation then a surgery plus 12 weeks of an "osteomy bag" plus possibly permanent ostemony.

I wish I could do something active - not just passive support.

13358363, Damn - peace to you, your mom, and all your fam/loved ones.
Posted by Brew, Fri Dec-06-19 12:39 AM
Sorry to hear about this man.

I watched my mom go through chemo, radiation, surgery, etc. when I was in high school. Not gonna lie, it's hard. But try and stay as positive as you can through it all - needless to say she'll need all the positive energy and vibes you can give her.

I'm sure you have a support system in place but if you ever have any questions or just need to vent, feel free to inbox me - at the very least I can offer a little perspective.

Anyway wishing your mom the best with her treatment, hope it's 100% successful for her. She can beat this, keep the faith as best you can.
13358366, Peace to you and your mom
Posted by navajo joe, Fri Dec-06-19 12:51 AM
Since May my mom has had two surgeries and two rounds of chemo. Shit has been hard because it is hard. I wish you and your mom the best and if there's anything I can do as some stranger on the internet let me know.

I've been amazed at how far chemo has come since my mom went through it for breast cancer in 1998. I hope your mom responds well to treatment and I hope you have what you need for you as a support/caregiver.

Peace to you both
13358371, That's really rough. Hang in there, brother
Posted by Mynoriti, Fri Dec-06-19 04:07 AM
That helpless feeling is no joke. be there for her however you can
13358379, Peace & Love. ✊🏾❤️
Posted by Walk On, Fri Dec-06-19 08:13 AM
13358381, I wish you, your mom, and your family all the best
Posted by walihorse, Fri Dec-06-19 08:39 AM
13358388, hope it all works out bruh.
Posted by tariqhu, Fri Dec-06-19 09:08 AM
keep that positive/reassuring energy up for her.

I had the same helpless feeling when my son had to get open heart surgery.
13358389, Best of luck to your family...
Posted by My_SP1200_Broken_Again, Fri Dec-06-19 09:08 AM
...i've been there too ..i hope better days are ahead


13358393, When this happened in my family
Posted by Vector, Fri Dec-06-19 09:23 AM
I didn't spend enough time chillin with him and engage in general day to day chit chat. Regret that now.

She'll appreciate it.
13358408, I hope all goes well...
Posted by Trinity444, Fri Dec-06-19 10:34 AM
I have a friend, 37 single black female that I met at work. she allowed me to ask questions since I didn’t have an experience dealing with it. One of the things she told me was that going through the process alone was the hardest. she also shared that she never had thoughts of dying. I met her 3 years ago and she’s fine now.



13358413, Sending out some love
Posted by flipnile, Fri Dec-06-19 10:49 AM
13358414, positive vibes to her, yourself and all your loved ones
Posted by mista k5, Fri Dec-06-19 11:02 AM
13358557, I pray she'll heal
Posted by c71, Sat Dec-07-19 07:16 AM
much prayers
13358588, 4 days and and she's "okay"
Posted by handle, Sat Dec-07-19 10:20 PM
Had 1 IV treatment, 4 days of pills.

Pain in calves and legs.

Fingers numb.

Must eat food over room temperature or her throat constricts.

I hope it stays this good - but I'll bet she gets weaker the longer she's on the stuff :(
13358589, sending love to you and your family
Posted by makaveli, Sat Dec-07-19 10:26 PM
I hope she makes it through with as little pain as possible.
13358622, do you live in a state that has medical?
Posted by My_SP1200_Broken_Again, Sun Dec-08-19 11:38 PM
....i know older folks can be less willing to try because of the stigma...but when the food starts tasting so bad from the chemo killing off the tastebuds, and the appetite goes away from being nauseous, medical cannabis REALLY helps ..for me it made all the difference and i'm not sure i would have made it through without it.
It totally stoped the constant dry heaving and had me raiding the fridge for food when otherwise i'd been curled up in a ball next to a garbage can all day.

Glad it's gone ok so far, and hope things stay steady for her throughout.
13358626, Sorry about this situation
Posted by obsidianchrysalis, Mon Dec-09-19 03:59 AM
Like others have said, be sure to gain plently of support from others, especially if you're one of her primary caregivers.

The powerlessness is one of the worst parts but know that your presence means a lot to her.
13360656, I hope the princess gets better.
Posted by kevgalaxy, Mon Dec-30-19 04:33 PM
13360658, 2nd round of IV chemo is really messing her up
Posted by handle, Mon Dec-30-19 04:37 PM
Like 10x the side effects.

We're going to schedule a meeting with the doctor and see what can be done.

She may refuse further chemo on go to another regime - but we have to figure out how it will affect the odds of recovery.

There are people who can not do chemo because of severe reactions - maybe this means just more radiation therapy and less chemo/ or to be put on 'milder" chemo drugs.

But some of the side effects last for the rest of your life - and my mom values quality of life over living in misery.
13360932, They are stopping chemo for a couple of weeks
Posted by handle, Fri Jan-03-20 10:13 AM
Looks like they'll put her on some milder pills and start radiation early instead.

13360661, rooting for y'all
Posted by infin8, Mon Dec-30-19 04:57 PM
13360769, Very sorry to hear that. Hoping for the best alongside you
Posted by Atillah Moor, Tue Dec-31-19 03:04 PM
13360813, Peace and strength to her. If you can provide that, that's active AF
Posted by ConcreteCharlie, Wed Jan-01-20 08:28 PM
I hope everything goes according to plan and she makes a full recovery
13360926, Sending out some more love.
Posted by flipnile, Fri Jan-03-20 09:46 AM
13367228, She started radiation last week
Posted by handle, Fri Feb-14-20 01:45 PM
She's back on some chemo pill and doing radiation M-F.

She's getting tired/exhausted and sleeping a lot more.

She doesn't like being slowed down, but she's accepting it.

I think in April she stops then they decide when/if surgery starts.
13367366, RE: She started radiation last week
Posted by jimaveli, Sun Feb-16-20 01:16 PM
>She's back on some chemo pill and doing radiation M-F.
>
>She's getting tired/exhausted and sleeping a lot more.
>
>She doesn't like being slowed down, but she's accepting it.
>
>I think in April she stops then they decide when/if surgery
>starts.

Sending love that way. It is crazy, but sometimes the pills are worse than the chemo infusions, so keep on being there as much as you can. And yeah, sometimes the side effects accumulate.
13367466, Im an RN in another specialty but have a few friends in oncology unit
Posted by eye.M.woman, Mon Feb-17-20 04:01 PM
Prayers, positive vibes and lots of STRENGTH!!!
Your mom is a fucking amazing human for going thru that.

Sending my love from afar!
___________________
Nas >>> your favorite rapper's favorite rapper
13383946, Mom is having surgery today (right now)
Posted by handle, Thu May-14-20 10:53 AM
The anesthesiologist called and said they just started.

I can't be at the hospital, and I can only visit her for 10 minutes after the surgery today. Then no visits until the day of discharge.
13383947, wishing you and your mom the best
Posted by navajo joe, Thu May-14-20 10:56 AM
My mom had her two surgeries last year. That was challenging enough. I can't even imagine going through all that right now.

I hope everything goes well.

Hang in there
13383987, that sucks you cant be by her side...
Posted by My_SP1200_Broken_Again, Thu May-14-20 12:45 PM
...hoping for the best for her and your family


13383995, Speedy recovery to your mom. the no visits thing has been brutal
Posted by Mynoriti, Thu May-14-20 01:21 PM
my grandma's been back and forth between hostpitals and nursing homes the last 6 weeks and i've seen only her twice. the second time was outside a glass door. She's in her 90s so she can't quite grasp why which makes it even worse.

it's good you can see her after surgery even though she might be out of it, and hopefully they'll let you zoom with her and things like that before discharge


13383996, RE: Mom is having surgery today (right now)
Posted by jffrsn, Thu May-14-20 01:39 PM
Sending you all the positive and supportive energy!
13384003, Good luck, wishing you all the best
Posted by walihorse, Thu May-14-20 02:21 PM
13384021, Good luck to your mom and to your whole fam.
Posted by Brew, Thu May-14-20 04:00 PM
Peace and love to you all. Not an easy time.
13384031, I can only imagine...
Posted by Trinity444, Thu May-14-20 04:46 PM
**hugs**

13384042, I'll be praying for her
Posted by c71, Thu May-14-20 05:37 PM
yes
13384053, Update: Surgery is successful
Posted by handle, Thu May-14-20 06:39 PM
Surgery went well.

She has had a lot of pain, they kept her in the PACU for 3 hours because they medicated her on her request and she fell asleep several times.

They allowed me in and we moved her for PACU to her room and got it all set-up up. So I was there maybe 80 minutes - well over the 10 minutes they said I could be.

She got more pain meds when I left - I am sure she'll be sleeping for a few hours at least.

I think they have her walk sometime later tonight or tomorrow morning - but if she's good tomorrow then I think it'll be good.
13384057, great to hear, man.
Posted by Mynoriti, Thu May-14-20 07:46 PM
hang in there