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Topic subject#hospitaldays b/w a game
Topic URLhttp://board.okayplayer.com/okp.php?az=show_topic&forum=4&topic_id=12534767&mesg_id=12534767
12534767, #hospitaldays b/w a game
Posted by imcvspl, Wed Aug-06-14 08:48 AM
So for the past four months I've been caring for my son who's been getting regular out patient care while waiting for a diagnosis and treatment path for what he's been dealing with. Some of you might remember last year he was included in the Discovery Museum's lego exhibit (his built when he was 5 is the first in this series - http://www.timeout.com/new-york-kids/things-to-do/check-out-kids-lego-works-at-the-art-of-the-brick-slide-show).

So we've been going into the hospital sometimes three times a week to get maintenance treatment while they figure out what's going on. Its crazy because over the course of the four months I've met at least a hundred kids and their parents just from the local tristate area who've been dealing with blood disorders and cancer. There's some suffering right under our noses that we don't even recognize until we're in the midst of it. At the end of the day I'm thankful because what my son's prognosis could have been a lot worse. I've met folk dealing with a lot worse. But it's still hard as shit.

So anyway they finally figured out how they want to treat him and I'm headed into the hospital now for another round of inpatient, sleeping in lounge chairs and eating coffee for breakfast lunch and dinner.

On the brighter side though one of the projects we were working on over the summer, which was to create a game for Marbles the Brain Store's pattern game challenge, was selected as a finalist. While I helped in the execution, the direction of the project was driven by my two older kids. I'd love to win this for them and so if yall wouldn't mind going to the facebook page https://www.facebook.com/media/set/?set=a.10152616131952372.1073741842.25943667371&type=1 and after you've had a look at all the games, click on the image for Ciphexr and throw it a like. Also feel free to leave a comment.

The winner is set to be announced on National Geographic's Brain Games (another favorite show of my kids) on August 25th. If all goes well my son should be home by then.

Thanks.

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